Sarah Long
Banksia Grove,WA
Summary
I am an enthusiastic genetic counsellor with a particular interest in non-invasive prenatal testing potential, preconception carrier screening, cancer genetics, bioethics and emerging technologies. I have completed Board Certification with the Human Genetics Society of Australasia and have commenced a PhD.
Overview
19
19
years of professional experience
Work History
Research Genetic Counsellor
PreGen, Neura
Sydney, NSW
02.2023 - Current
- Carrying out psychosocial interviews and collecting qualitative and quantitative data from couples undergoing whole exome sequencing during pregnancies for fetal anomalies
- Data entry and management for the PreGen Study
- Coordinating patient interviews and interactions between laboratories, clinical teams and research teams
- Participating in multidisciplinary meetings with international health care professionals
- Coordinating other team members and training colleagues
Genetic Counselor
Genetic Services of Western Australia, King Edward Memorial Hospital
Subiaco, WA
01.2007 - Current
- Initially commenced in clinic coordinator capacity, and then worked in the Familial Cancer Program for three years
- In May 2010 moved into general and prenatal genetics
- As of January 2016 working in Familial Cancer Program again
- Strengths;
- Excellent telehealth skills
- Can work effectively in a remote or work from home environment
- Can work effectively in a team or individually
- Passionate about patient autonomy and bioethics
- Excellent at time and work load management,
- Eager to learn and to apply this learning practically
- Eager to contribute to the field of genetic counselling through research and publications
- Regularly reviews old knowledge and stays up to date with new data and technology relevant to the field
- Constantly working on developing counselling skills through reflective practice
- Experienced and sought after lecturer
- Enjoys cross cultural counselling and learning about new cultures
- Experienced at working with translators
- Developing skills to supervise other genetic counsellors
- Has developed numerous letter templates and visual resources used by the department.
- Committed to increasing diversity and equity in the work place
Associate Lecturer
University of Technology Sydney
01.2019 - 01.2020
- Lecturer for the Masters of Genetic Counselling course
- Strengths;
- Developing course content
- Delivering online teaching
- Involved in ongoing learning about teaching
- Working remotely
- Student engagement
Research Data Manager
Medical Oncology, Sir, Gairdner Hospital
Crawley, WA
01.2006 - 01.2007
- Clinical Drug Trials
- Obtaining and recording of data, including organisation of appropriate blood tests, CT scans, ECGs and other clinical tests for patients taking part in clinical drug trials
- Communicating with patients regarding side effects, scientific protocols and questions specific to their chemotherapy trial
- Liaise between Oncologists, Pharmaceutical company, Patients, Nurses and Pharmacology to ensure scientific protocol is being adhered to
- Left position to start genetic counsellor training.
Research Assistant
Lions Eye Institute of Western Australia
Crawley, WA
01.2005 - 01.2006
- Viral Immunogenetics
- Able to work with laboratory mice (injecting, culling, harvesting organs)
- Proficient in molecular biology work (eg, DNA extraction from cells and tissue, PCR, sew PCR, sequencing, RFLP, Western Blotting, ELISA, previous experience with RNA isolation, reverse transcriptase PCR and immunohistochemistry)
- Able in microbiology and virology work (eg, cell culture, cell infection, virus assays, bacterial cloning, selection of plasmids using lacZ system, generation of murine cytomegalovirus with STOP codon in gene of interest)
- Other duties included making up stock solutions, autoclaving biological waste and freezing down cell culture stocks
- Left position when contract ended.
Education
PhD - Women
University of Western Australia
01.2019
PhD -
Curtin University
01.2014
Board Certification, FHGSA -
Human Genetics Society of Australasia
01.2013
Post Graduate Diploma - Genetic Counselling
Charles Stuart University
01.2008
Bachelor of Biomedical Science - Molecular Medicine
University of Western Australia
01.2004
High School Diploma -
Aranmore College
01.2000
Skills
- Test Coordination
- Patient Advocacy
- Verbal and Written Communication
- Case Management
- Screening Expertise
- Computer Skills
- PPE Use
- First Aid/CPR
- Conflict Resolution
- Critical Thinking
- Reliable and Trustworthy
- Working Collaboratively
- Organizational Skills
- Friendly, Positive Attitude
- Work Ethic
- People Skills
- Active Listening
- Microsoft Office
- Problem Resolution
Personal Information
I am a professional artist who has recently exhibited both in group shows and solo shows. I currently work on commission and previous works include book illustrations, single pieces, logos and prints. Examples of my work can be seen at http; Facebook, Smokey Longlong
References
Angela Overkov, Prev. Senior Genetic Counsellor, Section Head, Genetic Services of Western Australia 0401 025 382
Rebecca D'Souza, Current Senior Genetic Counsellor, Section Head, Genetic Services of Western Australia 0410 557 241
Helen Mountain, Senior Genetic Counsellor, Genetic Services of Western Australia 0419958838
Working Groups
Genetic Counselling Awareness Day ASGC Committee
ASGC Social Media Team
EviQ Cancer Genetics Review Committee
Publications
- Long S, O'Leary P, Dickinson JE. Western Australian women's expectations for expanded NIPT-An online survey regarding NIPT for single gene, recessive and chromosomal conditions. J Genet Couns. 2023 Oct;32(5):1047-1056. doi: 10.1002/jgc4.1715. Epub 2023 Apr 25. PMID: 37096445
- Long S, O'Leary P, Dickinson JE. 2022. Women's responses to prenatal genetic diagnosis and attitudes to termination of pregnancy after non‐invasive prenatal testing: An online survey of Western Australian women. Australian and New Zealand Journal of Obstetrics and Gynaecology DOI:10.1111/ajo.13608
- Long S, Lobo R, O'Leary P, Dickinson JE. 2021. Would I have Wanted to Know? A Qualitative Exploration of Women's Attitudes, Beliefs and Concerns about Non-Invasive Prenatal Testing for de novo Genetic Conditions after having a Child with a de novo Genetic Disorder. OBM Genetics ;5(4):15; doi:10.21926/obm.genet.2104142.
- Long S, O’Leary, P, Dickinson J, Lobo R. 2017. Women's understanding and attitudes towards Down syndrome and other genetic conditions in the context of prenatal screening. J Genet Couns. doi:10.1007/s10897-017-0167-7
- Long S, Goldblatt J. 2016. MTHFR genetic testing: Controversy and clinical implications. Aust Fam Physician.;45(4):237-40.
- Long S. 2016. NIPT for Microdeletions and duplications. MEDICUS- In publication (April issue)
- Long, S; Goldblatt, J. 2014. Noninvasive prenatal testing (NIPT) in Western Australia; Considerations in clinical practice. Australian and New Zealand Journal of Obstetrics and Gynaecology. Volume 54, Issue 5, pgs 487–489, October 2014
Social Media
Twitter @theredgc1
Timeline
Research Genetic Counsellor
PreGen, Neura
02.2023 - Current
Associate Lecturer
University of Technology Sydney
01.2019 - 01.2020
Genetic Counselor
Genetic Services of Western Australia, King Edward Memorial Hospital
01.2007 - Current
Research Data Manager
Medical Oncology, Sir, Gairdner Hospital
01.2006 - 01.2007
Research Assistant
Lions Eye Institute of Western Australia
01.2005 - 01.2006
PhD - Women
University of Western Australia
PhD -
Curtin University
Board Certification, FHGSA -
Human Genetics Society of Australasia
Post Graduate Diploma - Genetic Counselling
Charles Stuart University
Bachelor of Biomedical Science - Molecular Medicine
University of Western Australia
High School Diploma -
Aranmore College
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